Jesy Nelson 'outraged' after MPs debate muscle condition that affects her twins
The singer says children face a "postcode lottery", as testing for the disease is staggered.
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Notable Quotes
"I cannot believe we are still debating this."
— Jesy Nelson , Celebrity
"If it's safe enough for 72% of England to get this tested at birth, then why is it not good enough for the [other] 28%?"
— Jesy Nelson , Celebrity
"Where we can go further and faster safely, I will push for that to be the case."
— Sharon Hodgson , Politician
"We need to ask the Government why babies born in Portsmouth matter less than babies born in other parts of the country?"
— Amanda Martin , Politician
"Ukraine had managed to begin newborn screening for SMA 'during a war.'"
— Ruth Jones , Celebrity
Key People
MP for Portsmouth North advocating for equal access to SMA testing.
Former Little Mix singer campaigning for newborn screening for spinal muscular atrophy after her twins' diagnosis.
Ruth Jones is a British actress and writer best known for her role as Nessa in Gavin & Stacey.
Public health minister defending the staggered launch of spinal muscular atrophy testing in the UK.
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The singer says children face a "postcode lottery", as testing for the disease is staggered.
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